The global ahus registry
Web1 May 2024 · In brief, the Global aHUS Registry is. sponsored by Alexion Pharmaceuticals (Boston, Massachusetts), with. all retrospective and prospective cases of patients with aHUS across. 22 countries (351 ... WebAbstract. Background: Atypical hemolytic uremic syndrome (aHUS) is a rare disease in which uncontrolled terminal complement activation leads to systemic thrombotic …
The global ahus registry
Did you know?
Web3 Apr 2024 · Background Atypical Hemolytic Uremic Syndrome (aHUS) is an ultra-rare disease. Therefore, studies involving large samples are scarce, making registries powerful tools to evaluate cases.
Web24 Sep 2024 · This analysis of the Global aHUS Registry (NCT01522183) assessed demographics and clinical characteristics in eculizumab-treated and not-treated patients … Web21 Nov 2016 · The Global aHUS Registry (US National Institutes of Health www.ClinicalTrials.gov Identifier NCT01522183) is an observational, non-interventional, multicentre registry of patients with aHUS, and is a product of a partnership between worldwide academia, patients with aHUS and Alexion Pharmaceuticals, Inc. The aims of …
Web3 Dec 2024 · Methods: Of patients enrolled in the Global aHUS Registry (n = 1549), 344 had ≥1 kidney transplant. Of these, 188 had received eculizumab. Eighty-eight patients (47%) … WebBaseline characteristics of patients with atypical haemolytic uraemic syndrome (aHUS): the Australian cohort in a global aHUS registry — the UWA Profiles and Research Repository Baseline characteristics of patients with atypical haemolytic uraemic syndrome (aHUS): the Australian cohort in a global aHUS registry
Web15 Nov 2024 · Methods: The Global aHUS Registry collects data on patients with aHUS to develop a greater understanding of the condition and advance disease management. The …
WebThis retrospective analysis utilized data from the Global aHUS Registry (NCT01522183), an observational, noninterventional, multicenter registry that retrospectively and … queen mismylaWeb21 Nov 2016 · Here, we describe a collaboration between an international group of patient organisations advocating for patients with atypical haemolytic uraemic syndrome (aHUS), the aHUS Alliance, and an international aHUS patient registry (ClinicalTrials.gov NCT01522183 ). queen mississippi memeWeb31 Jan 2012 · The global aHUS registry: methodology and initial patient characteristics. BMC Nephrol. 2015 Dec 10;16:207. doi: 10.1186/s12882-015-0195-1. Belingheri M, … queen milton keynes youtubeWeb10 Dec 2015 · The global aHUS Registry, initiated in April 2012, is an observational, noninterventional, multicenter registry designed to collect demographic characteristics, medical and disease history, treatment effectiveness and safety outcomes data for aHUS patients. The global aHUS Registry will operate for a minimum of 5 years of follow-up. queen mississippi nürnbergWebMethods: The global aHUS Registry, initiated in April 2012, is an observational, noninterventional, multicenter registry designed to collect demographic characteristics, medical and disease history, treatment effectiveness and safety outcomes data for aHUS patients. The global aHUS Registry will operate for a minimum of 5 years of follow-up. queen mississippiWeb7 Apr 2024 · Patients with a clinical diagnosis of aHUS were included in the observational non-interventional Global aHUS Registry (NCT01522183) [].This registry was initiated in April 2012 to evaluate the clinical outcomes of patients with aHUS irrespective of the treatment modality used [].The registry study was established in accordance with the … queen mississippi restaurant la mata menuWeb1 Aug 2024 · The Global aHUS Registry is an ongoing, observational, noninterventional, multicenter, multinational study (NCT01522183) designed to retrospectively and prospectively collect information on the long-term outcomes and health status of patients with aHUS, as well as the long-term safety and effectiveness of eculizumab in this … queen millennia movie online